I am trying to take things slowly. It's only been 13 days. I painted Henry's room four days after finding out about his condition. It was therapeutic. It is important to me that I make a place for him in this world, no matter how brief his time. I try not to get tied up in whether or not he is born alive. He is our son all the same. We will paint his dresser, paint a border on the walls and put up his curtains.
We still haven't told a lot of people. It's hard to have this conversation over and over. We're planning to send out announcements. Not sure yet what those will look like. We want our family and friends to know we're having a boy, that he will not live long and to ask for their prayers. I want our family and friends to know about Henry and be able to talk to us about him and to understand why things are different.
And when Henry is with us, I want our family to have a chance to be with him. And when Henry is gone, I want our family to remember him and be free to talk about him. I want there to always be a place for Henry.
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