We are getting closer to Henry's birth day. We're trying to plan for that day and making sure everyone will be notified and have an opportunity to meet Henry. At the same time, we are writing his obituary - before he's even born. It's so unfair. How can this be?
I love laying next to my wife and feeling my son move. We may not ever get to sleep together. This is our chance to be together. I did not pay so much attention to these movements before Hazel was born. But now, I am aware of just how precious those moments are.
Our Story
This is our story of Henry, who was diagnosed with anencephaly at 20 weeks. We cherished his time with us and made the most of every passing day. We think about Henry constantly. He will always be part of our family.
As Hazel says, there are four of us now.
As Hazel says, there are four of us now.
Wednesday, January 12, 2011
Monday, January 10, 2011
A New Year
So it's a new year but not a new chapter in our lives. We're still waiting with Henry. Anticipating his birth but anxious that our time with him will be so brief. I just found out that friends of ours had a baby boy at Thanksgiving named Henry. I'm half afraid to see the baby. But another half wants to practice holding a newborn. I can't wait to meet our son Henry. We have gotten to know him so much more than while Sarabeth was pregnant with Hazel.
Sarabeth had an excess accumulation of amniotic fluid due to Henry's condition. She was so uncomfortable she could barley do anything. So she finally said yes to an amnio draw. The surgeon placed a small needle with a catheter into the uterus and removed a liter of fluid with a vacuum jar. We could see everything on the ultrasound. We could even see Henry kicking the catheter. It stopped working after a while. And when the surgeon pulled the catheter out, we could see why. Henry destroyed it by kicking so much. He is a feisty boy, earning his nickname "Henry the Lion" every day.
Henry jumps and rolls when he hears us. He gets excited when mom eats certain foods, too. He sleeps a lot, but when he's active, he's really active. We love him so much. It's so hard to imagine that we'll have to say goodbye.
Sarabeth had an excess accumulation of amniotic fluid due to Henry's condition. She was so uncomfortable she could barley do anything. So she finally said yes to an amnio draw. The surgeon placed a small needle with a catheter into the uterus and removed a liter of fluid with a vacuum jar. We could see everything on the ultrasound. We could even see Henry kicking the catheter. It stopped working after a while. And when the surgeon pulled the catheter out, we could see why. Henry destroyed it by kicking so much. He is a feisty boy, earning his nickname "Henry the Lion" every day.
Henry jumps and rolls when he hears us. He gets excited when mom eats certain foods, too. He sleeps a lot, but when he's active, he's really active. We love him so much. It's so hard to imagine that we'll have to say goodbye.
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