Our Story

This is our story of Henry, who was diagnosed with anencephaly at 20 weeks. We cherished his time with us and made the most of every passing day. We think about Henry constantly. He will always be part of our family.

As Hazel says, there are four of us now.


Wednesday, January 12, 2011

Plans

We are getting closer to Henry's birth day. We're trying to plan for that day and making sure everyone will be notified and have an opportunity to meet Henry. At the same time, we are writing his obituary - before he's even born. It's so unfair. How can this be?

I love laying next to my wife and feeling my son move. We may not ever get to sleep together. This is our chance to be together. I did not pay so much attention to these movements before Hazel was born. But now, I am aware of just how precious those moments are.

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